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National Cervical Cancer Coalition


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PostPosted: Thu Mar 25, 2010 9:31 pm 

Joined: Thu Jan 21, 2010 7:29 pm
Posts: 6
Location: Boston
Dear ASHA moderators and message board users,
I am 23 and I was diagnosed with HSV-1 in mid-December (You can see my post from January 25 titled "Frequent Outbreaks?" [url]http://www.ashastd.org/phpBB/viewtopic.php?f=8&t=7096). As I explain in this earlier post, I contracted HSV-1 from my boyfriend's cold sore and the test confirmed for me that it was type 1.

SInce then, I've had a raised line or paper cut lesion appear every 1-2 weeks. I have not had a full "outbreak" like the primary outbreak, but the paper cut lesion/enflamed line appears on one side of the labia about every 10 days or so. My ob/gyn prescribed me Acyclovir 400mg 3 times a day. I understand that this is the dosage for an episode or outbreak, but she told me to take it 3-times a day everyday as suppressive therapy. From what I can tell (and from what I've read on the message board) the Acyclovir is having little to no effect on my HSV-1 symptoms (preventing or treating them).

(1) Do you have any suggestions for what to do next? I am hoping to consult with a specialist since my doctor seems ill-informed about herpes (she has given me a lot of misinformation and had a hard time listening when I told her that Acyclovir wasn't doing very much for me). I am willing to try anything: medication, no medication, going off birth control (would this help things?), acupuncture, boosts for the immune system, or anything that you might recommend. I thought I might buy the herpes handbook ("The Good News About the Bad News") from the Westover Heights website in case that gives me any information that I don't already have, but it is also difficult to sort out information specific to type 1 and type 2.

(2) I'm afraid that I may have gotten a very high "dosage" of the virus because I shaved the genital area the night I had oral sex (bad, I know now), and my boyfriend had an active cold sore on his lip (he was not just shedding). Could a high "dosage" explain my abnormally frequent symptoms?

(3) How much of an effect can time have on strengthening my body's defense against symptoms? I understand that, theoretically, my body should be creating antibodies, and I've heard that things get better after the first year. Is this true? I was very brave when this all began but I am beginning to feel worn down since I can't go two weeks without symptoms. Is it possible for me to be this symptomatic now and less symptomatic (or asymptomatic) in 1, 5, or 10 years?

Thanks sincerely for your responses and support,

Kimberly


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PostPosted: Fri Mar 26, 2010 3:45 am 

Joined: Mon Feb 05, 2007 11:47 am
Posts: 5443
Location: PA
odds are this isn't all hsv1 going on. are they testing you for yeast and bacterial infections genitally too when you are being seen?

betsy

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PostPosted: Fri Mar 26, 2010 9:11 pm 

Joined: Thu Jan 21, 2010 7:29 pm
Posts: 6
Location: Boston
Hi Betsy,
They usually test me for yeast infections when I go in. (In January it was negative but in March they were unable to test). I also took Diflucan for the last month or so (3 in one week, then 1 every week for 3 weeks).
I don't think they tested for a bacterial infection although I suggested it. That's definitely something I can look into.
Thanks so much,
Kimberly


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PostPosted: Sat Mar 27, 2010 12:17 pm 

Joined: Mon Feb 05, 2007 11:47 am
Posts: 5443
Location: PA
if your gyn can't figure it out, perhaps a dermatology appointment would be helpful. so many things can cause issues in the genital area and your description doesn't sound like it's all herpes going on.

betsy

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PostPosted: Sat Mar 27, 2010 5:24 pm 

Joined: Thu Jan 21, 2010 7:29 pm
Posts: 6
Location: Boston
Thank you--I'll try that as well.
Also, are there any herpes specialists in the state of Massachusetts/city of Boston? I'm trying to see someone new since I've received some misinformation from my ob/gyn.
Thanks again!


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PostPosted: Sat Mar 27, 2010 6:21 pm 

Joined: Mon Feb 05, 2007 11:47 am
Posts: 5443
Location: PA
Sorry, I don't have anyone specifically to recommend there. Plenty of terrific hospitals/clinics and specialists in that area though to chose from. Not exactly middle of nowhere :)

betsy

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PostPosted: Sat Mar 27, 2010 6:33 pm 

Joined: Thu Jan 21, 2010 7:29 pm
Posts: 6
Location: Boston
Yep, you're right! In that way we're very fortunate. :)


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