About 8 years ago I was diagnosed with genital type 1 through a swab/culture test. My initial OB was very painful and seemed to last forever. I started taking meds within a few months (I think I started with 1g Valtrex daily) and it worked wonders. Over the next few years, any symptoms I had were extremely mild and anything that seemed like an actual OB happened maybe once per year and was mild, lasting only a few days with minimal discomfort. Over the years I've had a few different kinds of symptoms/things I think were herpes but not 100% sure, such as something much more pimple looking (whereas previously I would get just a pink bump that looked like a bug bite). Then, early last year I went through a process of feeling like I was being infected for the first time all over again -- prodrome feelings like bugs crawling all over my thighs, butt, even my face; sore thigh muscles; sore groin lymph nodes. This all lasted for weeks, and then I started developing little pimple-like things on my butt, and general irritation on both butt cheeks. I was thinking I had become infected with Type 2. Otherwise, it seemed so weird that my Type 1 would be acting up so much and in such new ways. I should also say that I was still on suppressive therapy and have been, constantly, since my initial Type 1 diagnosis 8 years ago. (Also, last year I posted about these symptoms and received, from Betsy, I think, feedback that what I was describing did not sound like Herpes.) So last year, after a few months, and then again in the Fall, I was blood tested for Type 2. Negative both times. And last year sometime I switched to Famvir suppressive to see if that would work better than the Valtrex since all those strange/new symptoms persisted on and off. Skip ahead about a year... After another round of symptoms a few weeks ago, last week I got tested again, this time for both Type 1 & 2 (IgG HerpesSelect AB). My results:
Type 1: 0.6
Type 2: 0.13
(negative is 0-0.9)
So, according to these test results, I don't have Type 1 (or Type 2), even though I received a genital Type 1 diagnosis through a culture/swab test 8 years ago.
Is it possible the Type 1 test is negative because I am on daily suppressive medication? I read about that on someone else's post. I'm currently taking Famciclovir 500mg once per day.
Is it possible my body is having a less than ideal immune response to the Type 1 and, therefore, my antibody level is low?
Within the next month or two I might stop taking the Famciclovir, wait a few weeks, and then repeat the tests, which might help answer my first question about if my daily medication has an impact on my antibody levels and the test result. I'll also know if, going off the daily meds, my symptoms seem to increase.
I'll also mention that I have very sensitive skin, have other itchy skin issues (that are clearly not herpes related), and will soon be tested extensively for allergies to all kinds of things (not just food, but chemicals, additives, etc.). This has all been very confusing for me.
Thanks so much for your feedback.