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National Cervical Cancer Coalition


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 Post subject: Hi, I'm new here
PostPosted: Thu Jan 20, 2011 10:43 am 

Joined: Thu Jul 29, 2010 9:24 am
Posts: 31
Location: Asia
Actually I registered awhile back but was never given a confirmation e-mail until I e-mailed the forum admin which assisted me in activating my account. Thank you for helping me to activate my account. I'm truly grateful.

I'm new here, and this is my story...

It has been about a year and 6 months odd and I still have genital warts. It was given to me by my ex-girlfriend, whom I hate very much after this incident. But I know I cannot blame her because she didn't know she had it until it appeared one fine day. I had no sexual contact with anyone else other than her. Our relationship was rocky, at one point she left me for a drug addict, before she came back to me. I'm thankful that it wasn't AIDS or something else, just warts. A friend of mine whom I have consulted said to think of it as "a skin problem". That did made me feel better. After all, it is, in a way, a skin problem. Like eczema and such.

I have a girlfriend now, whom I spoke to her about this before we were in a relationship. I know she's the one I want to spend my whole life with and she knows and understands my condition. Admittedly, she does feel a sense of fear and such. But she said she loves me and will help me recover. We never have any sexual contact and this is our 8th month together in the relationship.

I suffer from a health problem known as fallots tetralogy. It''s a heart condition. The doctor said that this might have been one cause on why my recovery is slower than most people, as the average to "recover from HPV" is about 2 years. She (the doctor) said it must be frustrating to see it going away and then coming back the next moment. I'll admit it is upsetting, but she assured me that this will all go away in time. I believe her, and my girlfriend and I are working towards ensuring my recovery.

One factor for recurrence, other than my body's immune system, is also stress.

Ironically, I have genital warts to thank for to know that true love does exist. Also that I have been keeping myself healthy, going to gym at least 3 times a week, cycling, drinking plain water instead of carbonated drinks and plenty of fruits and vegetables. I don't smoke, I do drink but I haven't been doing that for a rather long time.

I've been going to the clinic to get my warts frozen once a week, but the doctor observed that since it has been a year and more and that the treatment might not be as effective. She decided to switch the way I'm being treated by giving me Aldara cream instead. She said it might be worth a try because liquid nitrogen treatment has been going on for so long but yet the warts still come back. So I'm on Aldara now, tomorrow would be my 2nd dose. I've been given 3 weeks worth of Aldara and I am to go back if it doesn't get better. I hope I do, so that I won't have to go back to the clinic for this reason.

For those who are still fighting with warts, this is not the end of your life yet. Life has much greater things planned for you. On one hand, be grateful it isn't cancer, AIDS or something else. Don't give up.


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 Post subject: Re: Hi, I'm new here
PostPosted: Thu Jan 20, 2011 2:21 pm 

Joined: Wed Jan 05, 2011 7:00 pm
Posts: 12
Location: Houston
Hey there,

Welcome to the boards - I'm pretty new here as well.

Have you and your girlfriend considered getting her vaccinated with Gardisil? After the third shot, it should give her protection into the high 90's percentile for four to five years, from what I understand. That way, even if you do have continuing problems with GW, she can still be protected and the two of you can feel a lot easier about enjoying your relationship while you work on your treatment. If she's 26 or younger, it should be covered by health insurance.

Also, when you use Aldara, keep in mind that the instructions encourage you to throw away whatever is left in the packet that you don't use after each application. My doctor advised me NOT TO DO THIS. Apparently, the makers of Aldara are simply trying to sell a lot more of it by having patients throw some of it away, and it's already very expensive. He told me that all you need each time you use it is a very small amount on your fingertip for each wart and to apply it in a circular motion, centering on the wart, but covering the surrounding area equal to the width of your fingertip. Then, seal whatever is left in the packet with a clip or something that can effectively seal it shut. Use ONLY the amount you need for your particular case, then save the rest.

I'm not a specialist, but I'm quoting everything that my specialist has told me. Certainly talk to your doctor for a second opinion. Good luck and hang in there!


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 Post subject: Re: Hi, I'm new here
PostPosted: Thu Jan 20, 2011 7:25 pm 

Joined: Thu Jul 29, 2010 9:24 am
Posts: 31
Location: Asia
Hi Jreyn60, the person at the medicine counter told me the same thing too. That I should just fold it and keep it as one sachet is to be used for at least a week. Thanks so much for reminding me again!

I'm just having some difficulty still coming to reality that I have HPV even though it has been over a year. I have read cases of horror stories of people having it for 6 years and so on. I'm not sure if Aldara was the way to go but she recommended that we try something since Liquid Nitrogen has been done for so long and there's nothing that's really helping.


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 Post subject: Re: Hi, I'm new here
PostPosted: Fri Jan 21, 2011 1:33 pm 
Site Admin

Joined: Wed Oct 04, 2006 4:08 pm
Posts: 2122
Location: North Carolina
First, to jreyn: your advice is excellent, excellent, and excellent! Good idea on both the vaccine and not tossing the unused Aldrara. Thank you for such good insights.

Grief - thanks for stopping by and sharing your story with us. One advantage to Aldara is that it's linked with fewer recurrences than other methods of treatment, so hopefully there will be some benefit to you there. Please keep us posted and let us know how you're doing.

Best,
Fredo

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 Post subject: Re: Hi, I'm new here
PostPosted: Sat Jan 22, 2011 12:07 pm 

Joined: Thu Jul 29, 2010 9:24 am
Posts: 31
Location: Asia
I hope so. Actually I was rather happy when I didn't have warts for like 2 and a half months, then recently when there was recurrence, I freaked. So I went back to the clinic to see the doctor who spoke to me, she said it's good to know that I got tested for other HIV and the results were negative except for this. I hope my treatment using Aldara will be better than Liquid Nitrogen that I have been going for, for a year or more.

She said to go back after 3 weeks if the warts are not cleared. I hope I don't have to go back.

I do have a few questions in mind at the moment and I'm hoping someone would be able to answer them, I'd like to ask:

1. If masturbating also causes warts to spread or to reappear? Right now, the warts are located near the head but under the skin (I am not circumcised).
2. If it is okay when I apply Aldara near the glans of the penis and if urinating will "wash away" the effect of Aldara and I need to reapply? I understand that Aldara must stay on for 6 to 8 (or 10) hours before washing it off. So I put them on at night and take a shower to wash it in the morning when I wake up but sometimes I wake up to pee in the middle of the night


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 Post subject: Re: Hi, I'm new here
PostPosted: Tue Jan 25, 2011 11:56 am 
Site Admin

Joined: Wed Oct 04, 2006 4:08 pm
Posts: 2122
Location: North Carolina
1. If masturbating also causes warts to spread or to reappear? Right now, the warts are located near the head but under the skin (I am not circumcised).

Here's a response to this from an expert in the field:

I suspect that immediately local autoinoculation probably occurs--that is, spreading HPV around the genitals, especially with
friction "massaging" HPV into the epithelium, can result in local spread of warts. This also isn't proved, but my guess is that it happens from time to time. People with genital warts probably should avoid stimulating wart-infected areas if or when they masturbate.



2. If it is okay when I apply Aldara near the glans of the penis and if urinating will "wash away" the effect of Aldara and I need to reapply? I understand that Aldara must stay on for 6 to 8 (or 10) hours before washing it off. So I put them on at night and take a shower to wash it in the morning when I wake up but sometimes I wake up to pee in the middle of the night

It doesn't seem that normal urination would be a problem here, but I really don't know about this specific scenario. This might be something to ask your healthcare provider, especially if the cream doesn't seem to be working. I couldn't find anything in the patient prescribing insert about this.


Fredo

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 Post subject: Re: Hi, I'm new here
PostPosted: Tue Jan 25, 2011 6:22 pm 

Joined: Thu Jul 29, 2010 9:24 am
Posts: 31
Location: Asia
Thanks Fredo! I'll go ask the doctor if I have to go back. So far, the cream seems to be working.


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 Post subject: Re: Hi, I'm new here
PostPosted: Tue Mar 01, 2011 7:12 pm 

Joined: Thu Jul 29, 2010 9:24 am
Posts: 31
Location: Asia
I went back yesterday, I lost the battle with Aldara. I had the Aldara treatment for about 5 weeks, but it wasn't effective. The doctor checked and said I applied it right but even though the wart grew smaller, there are two small intersection in between. So it's both good and bad. Decided to go back to liquid nitrogen for 2-3 weeks to see how things will turn out. The doctor tried to find any underlying problems, asked if I am diabetic, and checked my previous records. Only conclusion was that my heart problem was sort of using my immune system for its own stuff and didn't contribute to helping with the HPV so that's causing the slowness in recovery. Another possibility being that the HPV strain I have is a persistent one. Doc said will heal, eventually, but at least it was comforting to know that it can go away if everything is done right, good diet, healthy lifestyle and etc.


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 Post subject: Re: Hi, I'm new here
PostPosted: Sun Jun 12, 2011 5:07 pm 

Joined: Thu Jul 29, 2010 9:24 am
Posts: 31
Location: Asia
So...it has been awhile since my last post. I never had any signs of it showing...

Until recently...

I see these really weird bumps on my lips. I only had 1 incident whereby there was a wart on my lips but it was frozen off. I'm about to head off to the STD Clinic to get them checked. Hopefully it just the warm weather or something and not warts.


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 Post subject: Re: Hi, I'm new here
PostPosted: Thu Jun 23, 2011 8:19 am 
Site Admin

Joined: Wed Oct 04, 2006 4:08 pm
Posts: 2122
Location: North Carolina
Grief wrote:
So...it has been awhile since my last post. I never had any signs of it showing...

Until recently...

I see these really weird bumps on my lips. I only had 1 incident whereby there was a wart on my lips but it was frozen off. I'm about to head off to the STD Clinic to get them checked. Hopefully it just the warm weather or something and not warts.


What did you find out? I hope they were able to give you a good idea of what is causing the bumps.

Fredo

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 Post subject: Re: Hi, I'm new here
PostPosted: Fri Jun 24, 2011 8:06 am 

Joined: Thu Jul 29, 2010 9:24 am
Posts: 31
Location: Asia
It's an oral wart. Fredo, I have some questions, and was hoping you might know of answers. This is my history, I had oral warts more than a year ago because I gave my ex-girlfriend oral sex on her vagina. After the appearance of the oral wart, it was frozen away with liquid nitrogen treatment. My questions would be...

1. It has been a year (and more) now. Why did it have a recurrence on my lips? Shouldn't my body have already fought the virus since I don't have a recurrence on my lips for a year and more already?

2. Can I spread oral warts by sharing drinks / straws / spoons etc?

3. Can I spread oral warts by kissing my girlfriend on her lips?

4. It has been more than 2 years and I still have HPV. Although for the past 1-2 months, there was NO genital wart. Only 2 Mondays ago did they find one and had frozen it. Can this be a good sign as I was wart-free for about 2 months?

5. Is there a chance that if someone does not clear HPV within 2 years, it means that she or he will be more likely to have it forever? Has anyone gotten it for like 3-4 years or more and suddenly cleared HPV / genital oral / warts?

It couldn't have been a new strain as I have stopped having sex since April 2008, never had sex since. The doctor said it might be that I touched my penis and then my lips, but I did not do that. I would wash my hands before I touch my lips and even so, I'd usually avoid touching my lips after washing my hands. What went wrong?

So sorry to trouble you but I'm hoping you could help give me an answer, thank you so much.


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 Post subject: Re: Hi, I'm new here
PostPosted: Mon Jun 27, 2011 1:08 pm 
Site Admin

Joined: Wed Oct 04, 2006 4:08 pm
Posts: 2122
Location: North Carolina
Hey there,

Thanks for the update. I don't know that your questions can be answered with much certainty, to be honest. I don't suspect there's much risk of HPV transmission by spoons/cups and the like, and any risk that might exist is probably greatest when warts are actually present.

HPV latency/clearance is very much an individual thing, and there's really no set time frame for these infections to clear. It's true most clear within a couple of years, but not always, and it can take longer.

Nobody knows what the exact risk is of kissing. Here too, you'd think it's probably most likely to happen when a wart is present. I don't think you can say there's no risk when warts are removed, but I wouldn't lose sleep over anyone you might have smooched. It seems to me I did see some studies that say "deep kissing" is a risk...I'll post something if I can find it.

Are they going to treat the wart, or just see if it goes away on its own?

Fredo

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 Post subject: Re: Hi, I'm new here
PostPosted: Mon Jun 27, 2011 1:13 pm 
Site Admin

Joined: Wed Oct 04, 2006 4:08 pm
Posts: 2122
Location: North Carolina
Not Too Surprising: Oral Sex Linked to Oral HPV Infections
Originally printed in HPV News
(c) 2009 The American Social Health Association

A study published in the Journal of Infectious Diseases suggests oral sex and deep kissing are risks for acquiring oral HPV infections.

Gypsyamber D’Souza, Ph.D., and colleagues previously demonstrated that oral sex is a risk for cancers of the oropharynx (tongue, soft palate, and tonsils). The American Cancer Society estimates there are about 34,000 cases of oropharyngeal cancer each year in the U.S. Heavy tobacco and alcohol use is strongly linked to these diseases, but “high risk” HPV plays a role with half or more of oropharyngeal cancers.

Does this mean that sexual behaviors are a risk for acquiring oral HPV infections? To examine the potential link, the investigators collected demographic and sexual behavior information from two cohorts: Patients with no history of cancer who were part of a control group in head and neck cancer research, and college-age men. Oral samples were collected and tested for HPV DNA.

Oral HPV prevalence was low in both groups, 4.8% in the control and 2.9% in the young men, respectively. With the controls, the risk of oral HPV infection was greater as the number of lifetime oral and vaginal sex partners increased (10 or more oral sex partners or 25 or more vaginal sex partners).

Among the young men, the risks were elevated as the number of oral sex and open-mouth kissing partners increased (vaginal sex was not a risk for oral HPV in this group). Oral HPV was detected most often among those who, in the last 12 months, had six or more oral sex or open-mouth kissing partners. In a subset of men with no reported history of oral sex, higher rates of oral HPV infection were found among those with 10 or more lifetime or five or more recent deep-kissing partners.

The investigators conclude that oral sexual behaviors associated with oropharyngeal cancers are also linked with oral HPV infections, and that deep kissing is also a risk.

Studies such as this inevitably lead some partners of those diagnosed with genital HPV to wonder if it’s safe to engage in oral sex. It should be pointed out that the vast majority of cases of HPV don’t lead to cancer. Cancers of the oropharynx–while they occur more often than cervical cancer–are still not common and don’t develop quickly, usually taking 10 years or longer.

There are few guidelines regarding oral sex and HPV, apart from common sense precautions of abstaining while skin lesions related to the virus are present (including cervical cell changes detected on Pap tests). The effectiveness of latex barriers (condoms, dental dams, and even household plastic wrap) in reducing oral HPV transmission hasn’t been studied, but some experts say they have value in protecting against other STIs when performing oral sex and may also reduce the risk of acquiring HPV.

References
G D’Souza, Y Agrawal, J Halpern, S Bodison, M Gillison. Oral Sexual Behaviors Associated with Prevalent Oral Human Papillomavirus Infection. Journal of Infectious Diseases, 2009. 199 (9): 1263-69.
G D’Souza, A Kreimer,R Viscidi, M Pawlita, C Fakhry, Wayne M. Koch, W Westra, M Gillison. Case–Control Study of Human Papillomavirus and Oropharyngeal Cancer. New England Journal of Medicine, 2007.
Cervical Intraepithelial Neoplasia. www.clinicaltrials.gov (study NCT00303823) http://clinicaltrials.gov/ct2/show/study/NCT00303823

Posted by Fredo

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 Post subject: Re: Hi, I'm new here
PostPosted: Tue Jun 28, 2011 7:02 am 

Joined: Thu Jul 29, 2010 9:24 am
Posts: 31
Location: Asia
They had it frozen off. Lesions are still there, they'll most likely have it frozen again when I see them on next Monday. About the oral warts, does that mean that if I had history of oral warts, and even though no lesions /warts are present, deep kissing can still transmit the oral warts? What about sharing of spoons and straws when lesions are not present?

Also, what are the chances she had caught oral warts because of me?

What are the chances of recurrence for oral warts?


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